Showing posts with label avoid crohn's flare up. Show all posts
Showing posts with label avoid crohn's flare up. Show all posts

Thursday, November 13, 2008

My Crohn's Update - Link Between Stress and Crohn's Disease

Well, I continue to undergo major stress. I just went through 5 1/2 hours of mediation with the ex and woulden't you know following this I had a Crohn's flare up. I spent most of my night in the bathroom. I hurt so bad I can barely walk today. I woke up for work an hour early and spent it on the toilet. I made my way to work and have been in the bathroom twice in 20 minutes. Each time I dread going because a certain area is so raw that I cried the last couple of times. Yay, its going to be such a great day.

All I know is that for me personally, the link between stress and Crohn's Disease is very real. I am pretty sure this episode will last long enough to qualify me for the second round of Prochymal in the Osiris Stem Cell Infusion study. I guess thats good news???

Tuesday, August 19, 2008

Osiris Prochymal First Phase Complete

Well, I am definitely feeling a bit different. I think better?? All of the stress i am going through would normally propel me like a rocket, straight into (or is it ass backwards into) a flare up. I believe the fact that my Crohn's is not flaring, despite the fact that I am not on ANY other medication (aside from the Osiris Prochymal) looks good. I am still having pain and all of that good stuff but it is just "different." I wish I could be more descriptive, but words fail me. I have never been too good at being in tune with my Crohn's...I kind of just deal. On the negative side, my body is a wreck from sports and the stem cells should theoretically be helping me out a bit with muscle soreness and issues. My knee is shredded and I need to have surgery, and my back is still giving me fits. Every day I play soccer (injuries have kept me out a full week as of tomorrow) I have another strain or pull. Maybe its just the old age. At any rate, I have a follow up docs appt next Thursday and we'll see where we go from here!

-Scottie

Tuesday, April 29, 2008

Crohn's Flare Up Again

Man, every time I feel like I just might be getting ahead I seem to flare up. I hate to say it and I know it will disappoint everyone from Dr. Shafran to my wifey but I suck at taking my meds lately. I feel like with the Humira I was doing well and I want to go back on it. But I was having an allergic reaction to Humira. I bring it on myself and I know it, but I am having pain and way too many urgent "movements"! I need to be better about my Pentasa! Ok, short but had to Vent. Keep your heads up guys and gals!

Wednesday, January 16, 2008

Due for a Humira Shot

I feel like I am ALWAYS one step away from a Crohn's flare up. Dr. Shafran has just put me on weekly Humira shots. I am a day overdue because the Insurance company always screws it up, but my refrigerated shipment of Humira should arrive today. Hope all is well with you guys.

Monday, November 19, 2007

Scott Roy is Going to See Dr. Shafran

Going to the good doctor Shafran in Winter Park on Wednesday afternoon. Maybe he can give me a miracle cure so I can chow down on Thanksgiving. This is the time of year that I had a big Crohn's Flare up that landed me in the hospital in 2006. Hopefully the Humira keeps me away from there but stress at the new job is begging to differ. I am doing OK...standard Crohn's cramps. I haven't been to Dr. Shafran and am curious to see what is new with my treatment as well as catch up with his wonderful staff!

Saturday, November 10, 2007

Humira Shot for Crohn's Disease at 12:45 AM - Party Hard

Well i didn't get my Humira shot this week so after about 6 beers I got home just in time for Amy to poke a needle in my arm full of Humira. I felt like I was super relaxed but it really hurt for some reason. Oh well....2 more weeks until I get more Humira. We'll see how it goes. Keep your heads up gang...Things are going a bit better for me, but work stress and stress at home are still getting me good. Lets hope I avoid a flare-up

Crohn's Disease Blog