Showing posts with label Scott Roy Crohn's Disease. Show all posts
Showing posts with label Scott Roy Crohn's Disease. Show all posts

Wednesday, October 29, 2008

I am a (kinda, sorta) famous blogger!

So on Monday the web traffic to my marathon training and running blog goes through the roof. I check out my stats to see where it is coming from and it is a combo of Wall Street Journal online and direct address entry. As it turns out, my running blog was the #1 feature on their blog watch section, both in print and online. Anyways, I was pretty excited, but I really wish they had focused on this blog instead. Either way, I am excited that they did mention Crohn's Disease. "As Mr. Roy chronicles his training regimen, readers see him deal with the challenges that every dedicated runner faces, like a busy schedule and nagging injuries, as well as the added burden of Crohn's disease, a chronic inflammation of the digestive tract."

Check out the article here.

Monday, March 3, 2008

Another Day in the Life of Crohn;s

So I saw the Dr. Shafran and Patty today. I gotta say these guys (Winter Park, Fl) are the best gasto doctors I have come across in the 13 years I have had Crohn's Disease. Anyways we discussed a wide variety of topics. I need to be Humira free for 3 months before I can start the clinical trial that is Stem Cell Transplant for Crohn's. The trial is actually a 4 stage blood transfusion that I am going to read up on more (and report my findings tonight). It seems pretty low risk, but there is a 1/3 chance I will get a placebo, (what, red kool-aid??) 1/3 chance I get a half transplant (hopefully my right side!), and 1/3 chance I will get a full transplant. I am going for a 3-d Cat Scan next week which will allow them to better see the extend of my disease. As a bridge I am going back on Pentasa/Azulfidine (9 pills a day). I also am going to try Lexapro (10 mg). I have not been myself this past year. I am myself (HAPPY) about 2 hours a week. The rest of the time I am in pain, bummed, tired, stressed and cranky. I also have alot of anxiety issues and fear of death and dying, thought not necessarily dying from Crohn's Disease. Anyways more to come later.

Thanks for the support guys.

Crohn's Disease Blog