Tuesday, September 23, 2008

Message I got from one of my Crohn's Blog readers on Myspace.

Now this blog reader shall remain nameless, but it can show you the down side of Crohn's. We all try to remain positive, but sometimes we need to vent and rant. This is classic, and painfully accurate message from one of my myspace friends (that i met through this blog). I am sure many of you can relate, so I had to post this. Parental Advisory: Explicit Lyrics

I'M SO TIRED OF MESSING WITH CROHN'S!!!!!!! NOTHING WORKS, NOT THE HUMIRA, NOR THE STEROIDS, THE OTHER PILLS, NOTHING.

CROHN'S SUCKS AND I'M TIRED OF WORRYING THAT I MAY NOT MAKE IT TO THE BATHROOM, I AM TIRED OF WONDERING "IF I EAT THIS, WILL IT MAKE ME SICK?"I'M TIRED OF MY SEVEN YEAR OLD SON WORRYING THAT I AM SICK AND EMBARRASED FOR HIM THAT HE HAS TO RUN TO THE BATHROOM WITH MY IN THE MIDDLE OF THE GROCERY STORE.

I'M SICK OF THE SHITTY INSURANCE COMPANY SUCKING EVERYTHING FROM ME BUT THE ACTUAL CROHN'S. I'M SICK OF SURPRISE BILLS FOR MEDICATION THAT DOESN'T WORK.I'M JEALOUS OF MY HUSBAND FOR BEING ABLE TO ACTUALLY FART AND NOT WORRY THAT HE MAY SHIT HIMSELF.

I AM SICK OF WORRYING THAT I MAY BE SICK DURING INTIMATE MOMENTS WITH MY HUSBAND. I'M JUST TIRED OF IT. IT ALL SUCKS BIG HAIRY BALLS. THANKS FOR LETTING ME VENT. SORRY FOR THE LANGUAGE, BUT I THINK YOU PROBABLY HAVE HEARD THE BAD WORDS BEFORE.

I KNOW YOU DON'T EVEN KNOW ME, BUT IT'S COMFORTING TO KNOW THAT THERE IS SOMEONE I CAN VENT TO THAT COMPLETELY UNDERSTANDS WHAT I'M GOING THROUGH.

2 comments:

farawayme said...

I definitly relate to this.

I recognise all this from when I was very ill and even now when I am in remission I still hate that I have to know where the toilets are when I go out and that I hjave to take my 1 year old into the tiny loo's with me as I cannot wait.

Crohn's does suck! Sometimes you just need to vent and get it off you chest I agree. Sometimes it is hard living with a disease that to other is so embarressing and knowing that there is no cure.

Bev x x x x x

If your friend reads this she should feel free to contact me if she wants another person who understands to talk to. x

Chris said...

I completely agree. I think the more people you can talk to about it the better you will feel. I tend to be as open as possible with my friends. Reading, talking, and writing about your experiences are all very therapeutic. Feel free to contact me too.

Crohn's Disease Blog