Friday, August 31, 2007
Thursday, August 30, 2007
Ok, so here goes..gonna time it...30 seconds from entry to needle withdrawl. This particular one wasn't so bad....I don't feel the needle enter...as I type this two minutes later it hurt worse than the actual shot. Maybe I am just a wuss...pain has subsided....it's not as bad as it sounds. Oh, and my biggest concern with Humira is the cancer. I guess it lowers the effectivess of the immune system. I often wonder if I should stick with the Asacol and/or 6mp and deal with the Crohn's so as not to deal with the possibility of cancer.
Sunday, August 26, 2007
Saturday, August 25, 2007
DEAL WITH STRESS (Don't Sweat the Small Stuff!) - A major risk factor for Crohn’s flare-ups is stress. While it’s impractical to think that you can remove stress from your life completely, making an effort to at least try and limit the amount of stress can seriously reduce the number of and severity of Crohn’s flare-ups. Things like yoga or medication or even just making time in your schedule to read a good book can be great ways to relaxbeat stress. For me it is sports....soccer, running, just getting a mental break by myself somewhere. I am firmly convinced that your ATTITUDE can help prevent Crohns Flare Ups.
PREDNISONE - If I feel one coming on..I self-medicate a bit. I may up the Asacol, take a Humira shot early...or the best thing is two a mini (2 dose or so) blast of left over Prednisone.
LIQUID DIET - Take at least 24-36 hours are rest your gut...Drink shakes, soups, etc...put yourself on a full liquid diet.
FOODS TO AVOID - During a Crohn's Flare up most doctors, will tell you (probably wisely) to avoid spicy foods, whole grains, ruffage (lettuce, etc) and dairy products. Again, the idea is to keep it bland.
Thursday, August 23, 2007
Tuesday, August 21, 2007
So...two takeaways -
1. You can play sports even with active Crohn's or a flare up. I do it. Several professional athletes do it (David Garrard and Theo Fleury being two of them.)
2. Find your distraction....whether it's water-skiing, bungee jumping, joining the professional Rock, Paper, Scissors circuit (there is one), or meditation....Find something that at least for a few moments makes you forget about Crohn's.
Monday, August 20, 2007
Sunday, August 19, 2007
- Maintain Weight During a Flare Up (Sickening as it is I love losing a few pounds during a flare up...the ONLY good part). For me It helps to go on a liquid diet when I feel a flare coming.
- Mayo Clinic - Article on the Subject Debating whether of not Diet Affects Crohns
- The Specific Carbohdrate Diet
- Finally, I can't stress how good the diet and advice is in the book Will of Iron by Peter Nielsen
Wednesday, August 15, 2007
Tuesday, August 14, 2007
Anyone else deal with pain in the workplace?
Thursday, August 9, 2007
Wednesday, August 8, 2007
Tuesday, August 7, 2007
I was set to join a clinical trial for Adalimumab (sold as Humira), but the day before I was to start it got approved by the FDA. After a huge waste of paperwork for the trial, the insurance company denied the drug because it was so new its main use is not for Crohn's disease. Well, after 4 needles during the loading period (subdermal), and then 2 every 2 weeks, I am now on 1 every 2 weeks. The needles are nothing, but the medicine itself STINGS unbelievably bad. I both dread and look forward to those shots of Humira every two weeks (I am an adreniline junky, so I somehow play that in mentally to get through). Anyhow, my Crohn's is under control and I am happy. Stay tuned for some content to help out fellow chronies. By the way, I have ZERO affiliation with Humira, or whoever makes it (I think it is British company).
As most all of you know, I (Scott) have Crohn's Disease.
At Some point I will dedicate some time to making this page a bit more informative. In the meantime, here is some basic information on Crohn's Disease:
What IS Crohn's Anyway?
An estimated 500,000 Americans have Crohn's disease, an inflammatory bowel disease (IBD) that causes chronic inflammation of the intestinal tract. Like ulcerative colitis, another common IBD, Crohn's disease can be both painful and debilitating and sometimes may lead to life-threatening complications.In my case, the disease is centralized near my terminal ilieum (near the colon). There's no known medical cure for Crohn's disease. However, therapies are available that may greatly reduce the signs and symptoms of Crohn's disease and even bring about a long-term remission. (When healthly I take about 16 pills a day, when in a flare up, I lose count.)
Are there famours people with Crohn's Disease?
Yeah, some people you may know include:
Mike McCready, Pearl Jam Guitarist
Anastacia Kirkland, singer
Theo Fleury – NHL
Shane Corson– NHL
David Garrard - NFL
Shannon Doherty, actress
Marvin Bush, Dubya's brother
George "the animal" Steele, legendary wrestler
Monday, August 6, 2007
What is Crohn's Disease? It is a form of recurring inflammatory bowel disease (IBD), found in over 500,000 people in the United States. Symptoms of Crohn's Disease can include uncomfortable and sometimes devastating side effects if not properly managed including:
Diarrhea, Cramping, severe, Weight-loss, Malnutrition, Rectal bleeding caused by fissures.
Saturday, August 4, 2007
Cortisone or Steroids. Cortisone drugs and steroids—called corticosteriods—provide very effective results. Prednisone is a common generic name of one of the drugs in this group of medications. In the beginning, when the disease it at its worst, prednisone is usually prescribed in a large dose. The dosage is then lowered once symptoms have been controlled. These drugs can cause serious side effects, including greater susceptibility to infection.
Immune System Suppressors. Drugs that suppress the immune system are also used to treat Crohn’s disease. Most commonly prescribed are 6-mercaptopurine or a related drug, azathioprine. Immunosuppressive agents work by blocking the immune reaction that contributes to inflammation. These drugs may cause side effects like nausea, vomiting, and diarrhea and may lower a person’s resistance to infection. When patients are treated with a combination of corticosteroids and immunosuppressive drugs, the dose of corticosteroids may eventually be lowered. Some studies suggest that immunosuppressive drugs may enhance the effectiveness of corticosteroids.
Infliximab (Remicade). This drug is the first of a group of medications that blocks the body’s inflammation response. The U.S. Food and Drug Administration approved the drug for the treatment of moderate to severe Crohn’s disease that does not respond to standard therapies (mesalamine substances, corticosteroids, immunosuppressive agents) and for the treatment of open, draining fistulas. Infliximab, the first treatment approved specifically for Crohn’s disease is a TNF substance. Additional research will need to be done in order to fully understand the range of treatments Remicade may offer to help people with Crohn’s disease.
Antibiotics. Antibiotics are used to treat bacterial overgrowth in the small intestine caused by stricture, fistulas, or prior surgery. For this common problem, the doctor may prescribe one or more of the following antibiotics: ampicillin, sulfonamide, cephalosporin, tetracycline, or metronidazole.
Anti-Diarrheal and Fluid Replacements. Diarrhea and crampy abdominal pain are often relieved when the inflammation subsides, but additional medication may also be necessary. Several antidiarrheal agents could be used, including diphenoxylate, loperamide, and codeine. Patients who are dehydrated because of diarrhea will be treated with fluids and electrolytes.